We have tried a new medicine that she gets when inpatient, but the nurse doesn't want her to use it too often because its mixed with Benadryl and will as a result cause sleepiness, but if you ask me, I would much rather deal with the sleepiness it causes than the alternative (puking).
Today Arley had her full body CT scan. They scanned her head, neck, abdomen, pelvis, etc to see if the chemotherapy and radiation treatment has done its job. I don't know how long until the results come back, but am hopeful that after Thanksgiving we should have some answers.
I also talked to her doctor today because it has been almost a month (on Friday) that she had her initial consult with the Physical Therapy team to see about getting the braces on the legs and then I heard nothing. Two weeks ago I called them to figure out when they were going to schedule an appointment, got a huge run around and was told they would contact me with an appointment and I still heard nothing. So today when we went up to the clinic for Arley's blood counts the doctor and I walked to the PT office and got the number for Ortho. Arley now has an appointment for December 1st so hopefully she will get fitted for her braces then.
Because of this delay I will have to call PT tomorrow and cancel all of her appointments that she has (starts Wednesday) because you can't give someone physical therapy when they don't have the proper equipment they need to learn with. Thankfully the doctor agreed with me 100% so I will have to make that phone call tomorrow morning and get that squared away and then reschedule her appointments once we meet with the Ortho team on the 1st.
Gosh this stuff seriously is exhausting. It shouldn't take this long nor be this hard to get my child an appointment she needs especially since the doctor did his job and sent us over to PT for a consult. Why it's taking so long to meet with Ortho is seriously beyond me, but whatever. I'm on top of it and finally have her scheduled.
With all that being said, nothing else is new in our world. Just the usual amount of appointments, blood work, shots, chemo, more blood work etc I'm sure you all know the drill by now just as good as us haha.
We got to spend some quality time with my sister this weekend and took some cute holiday themed photos of Arley which really got me in the mood to want to set up the Christmas tree. Yes and before Thanksgiving too! Shocker! LOL
Have any of you New Englanders ever visited The Enchanted Village at Jordan's Furniture in Avon? If not, then I highly recommend you go whether alone, with your children or grandchildren it is truly spectacular. You take a walk through their village and experience what the Christmas season was like at the turn of the century years ago. I love nostalgic stuff like this and I'm sure you will too!
Speaking of which I need to try and find some more holiday decorations too. I really want to spruce up the place and make this season truly magical for Arley. She deserves it and I know she will really love getting into the spirit this year because she's at the age where I think she can truly understand it. Not only that though, but at my sister's she helped pick out a special ornament and hung it on the tree all by herself which she was super proud of, so because of that I'm starting to slowly get into the spirit of wanting to decorate. We shall see how it goes though.
That's about it for the updates right now, but I wanted to leave you with one of my favorite photos from The Enchanted Village as well as my favorite from the impromptu photo shoot. Until next time friends...
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