Nine Months

Whew...

Here we are nine months into our journey with Rhabdomyosarcoma. This past month has definitely been the most challenging for us as of recent, but has also brought a ton of new memories into our lives as well.

Arley has been up and down ever since becoming immune to one of her meds and allergic to the other. It worries me as to how it may effect the rest of her treatment as we are coming up on our next inpatient visit the beginning of February. 

She has also become more emotional in the past month. She cries over the smallest thing and gets herself worked up. It's hard to differentiate between what is a normal reaction to being a typical three year old and what is the cause of the medicines and chemotherapy. Her doctor said that it probably plays more on the chemo side of things than her age as he recently had another patient go through the same thing who is older.

It's difficult because we can be playing together innocently and then she will accidentally drop something and it roll underneath the bed and will immediately burst into tears about it. To me it's not that serious, but to her it seems like the end of the world. It has been frustrating because I don't take her out too much anymore and when I do its like meltdown city if something just doesn't go right and it's not easy to console her when you are driving in the middle of rush hour.

Aside from that she remains in great spirits overall and I hope to keep it that way. If we can just get rid of this runny nose she has been dealing with since our last inpatient visit we would be all set.

If you haven't been following along with us on Facebook then you may have missed some of the most recent joys we had this month which included having her wish granted by the Make-A-Wish Foundation and visiting New York City. Then being adopted by the Hartford Hawks Softball team and most recently being on the news for the Miles for Smiles program with Make-a-Wish and NBC30 CT news.


The next best thing we are looking forward to is that changes are coming, and there are bigger and better things waiting for Arley & I just over the horizon and in due time will be shared with a need to know basis. Until that time comes though however Arley and I will continue on this cancer journey and aim to be on the road to remission. I feel as though it is coming, but will never get my hopes up because I have learned from this experience that when one bright light shines, something is always lurking behind to blow it out. 

I am however very thankful for the new people in our lives as well as some old ones who have recently come in contact again. It's always good to know that no matter where life leads you that you can always find your way back to each other and pick up where you left off as if no time has passed between you. 

With that I am off, have lots to do today in preparation of our visit to the clinic tomorrow. Newer updates will be added soon. Until then....