In patient treatments, G-Tube surgery, Dreamnight at the Zoo, Fenway, the Buchholz Bowl so much in such a short amount of time and still we have a lot left to do and see before our time here comes to a close.
Arley has been doing well with her treatments, but we still don't know how effective they have been just yet. She has had setbacks in regards to her appetite and weight yet again and has to take daily nausea medicine now to hopefully combat this and get her back on track.
She has been more tired lately and often takes a long nap in the middle of the day to recharge herself. This whole experience has been so stressful and we are ready for the summer to be over and to be back home in Connecticut.
Speaking of which, tomorrow is going to be bittersweet because one of Arley's little friends Addie, is graduating tomorrow and heading back home. While its wonderful that she gets to put this wonderful triumphant feat behind her, we are certainly going to miss her, her older sister and parents a lot. Working on puzzles together definitely won't be the same without them. They are wonderful people and I'm happy our lives crossed paths even though I wish it were under better circumstances for our kids.
It's been a relief of sorts to have someone who is going through the same situation as us to relate to and really honestly and truly understand what its like to be on this rocky roller coaster ride. Nobody quite understands like a parent who is currently in your shoes. To vent, to laugh, to complain, to lend an ear is worth its weight in gold. There's just something to be said about looking at someone, not saying anything and realizing that they truly feel for you as you do for them.
We wish Addie the best on the rest of her journey and I hope we can get the girls together again before the holiday season is upon us, I know Arley would love that!
Sigh... our turn is so close and yet still so far away. I've been trying to come up with some fun things to do to occupy our time and give us small things to look forward to. For starters, Arley gets to see her uncle James tomorrow which is really exciting and then I plan on taking her to a local farm I found on Google that has a petting zoo and pick-your-own fruit that will be something cute to experience. (She can't touch the pets or feed them, but she can certainly look!) Other than that its business as usual. Treatments everyday while we prepare for her chemo next week (in-patient) and count the days until we are home again. So far now, until next time friends....
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