Sayonara Summer!

I had high hopes for this summer, I truly did. I thought, we had two awful summers health wise, we couldn't possibly go for a third. Or could we?

Sigh.....

Arley has had some minor setbacks that we have been dealing with since the end of May that resulted in an impromptu visit to the emergency room when she spiked a fever and continuously kept vomiting despite our best efforts to keep it at bay.

As the summer wore on it didn't get any better and still hasn't, but with time I'm hopeful that it will fix itself. I haven't told too many people, even some of those in our inner circle don't know. It's not that I don't want other people to know, it's just a lot of people don't understand and I'm tired of the unsolicited advice I get even though it's full of good intentions. 

The thing of it is, and what people fail to realize is, Arley is not your typical kid when it comes to certain things and I accept that. With having cancer it has also magnified those things even greater. What works for Susie Sunshine down the street, won't work for her. Believe me, I have tried everything.

I will say though, and my wallet growls at me every time, but bribery has helped a little bit with the progression. Very, very slowly we are seeing positive results, but we are still no way near where we should be. Admittedly I'm usually not the type of parent who will use bribery for things to get done, but when it comes to ones health I will do whatever works. 

Learn to pick your battles with kids folks, seriously...

Needless to say, Arley has a fabulous Shopkins collection right now that she is quite proud of, compliments of the one and only Youtube, and it gets her excited and wanting to work hard at being successful which is always a positive in my book.

Currently we are awaiting our next round of scans to be done conveniently on the first day of preschool so naturally we will be missing it. Sad face. We then have to schedule three additional appointments with different doctors/teams to focus on some other issues that still haven't improved yet and could take up to a year to rectify itself. 

On a positive note though, Arley still maintains her upbeat, comedic personality and acts as though nothing fazes her in the slightest. She's looking forward to going to preschool and I hope to enroll her in dance if our schedule and budget allow for it. Plus she will be hanging out with the Hartford Hawks softball team again in a couple of weeks as well as celebrating her 4th birthday. We have a ton of exciting things to look forward to as we head into the cooler months and I'm ready for it. Until next time I bid you adieu. 


PS- Despite all that has gone on medically with Arley we still tried to make the most of our summer. We attended almost every single Bristol Blues baseball game, went to Lake Compounce, The Bronx Zoo, Boston, Museum of Science, Imagine Nation Museum, Peach and Strawberry picking, Jumpin Jammin, Flight Trampoline, the Library and a few other places I seem to have forgotten. 

One thing though that is certain, I will never allow the journey we are on to bring us down. Always moving onward and upward, conquering each battle as it arises.