Last night Arley and I attended the Christopher's Haven Fashion Show event at the Fairmont Copley Plaza Hotel in Boston. It was a lot of fun and I am so thrilled that we got to be apart of it and Arley was chosen as a runway model.
We got to meet Marcus Cannon who plays tackle for the New England Patriots and Dustin Pedroia who is second baseman for the Boston Red Sox. Arley actually clung to Dustin's leg for a photo op (she was tired, I was horrified), but he said it was cool and laughed it off. I'm sure he's used to it considering he has three young sons, but still...if you read this Dustin, I'm sorry! Whoops!
Arley also started to have a slight nervous meltdown shortly before going on stage to walk the runway. Originally she was scheduled to walk with another girl, Peyton, but she was afraid she wouldn't be able to see me in the crowd. I told her I would walk the runway with her, but on the floor next to the stage if that helped (it wouldn't), so instead to calm her tears I decided to actually get up and walk the runway with her before showtime.
Thank goodness mama decided to wear a fancy dress to the event otherwise that would have been awkward!! Although in my defense, my other outfit was a nice blouse and slacks, it still wasn't as fancy as my dress. Despite Arley being nervous we owned that runway for our walk, did a little twirl before marching back up the runway and exiting stage left.
All in all it was a fantastic event and I hope that the donations and silent auction items brought in thousands of dollars to help support Christopher's Haven and families like ours have "A home for kids when cancer hits home."
If you yourself would like to help support Christopher's Haven, please click Here and it will bring you to their donation page. Thanks so much! Until next time...
Tuesday, May 24, 2016
Saturday, May 21, 2016
Caught in Limbo
It has been a rough couple of days here...
Arley had her checkup with her Oncologist a few days ago. We discussed some concerns and also discussed who would become her new doctor once her current one moved away. Thankfully, we were in agreement as to whom should be taking over her care from here on out so I can breathe a little easier knowing that it's a doctor we like, though we have only ever had one previous interaction.
Then Arley was prepped for her scans, had them, and we went home. An hour after we got home we received a call from her doctor stating that something had shown up on the scans in a new area of the body and that we would need to schedule further testing immediately.
We were warned about this.
Though it doesn't help my anxiety knowing that this was a possibility and that we now have to wait in limbo before she can have more tests and see where it is we will go from here.
I'm hoping that it's nothing, but preparing for the fact that once you have cancer, the likelihood of more coming is evident and sometimes rampant. Ever since that phone call I feel as though an elephant has been sitting on my chest. It feels extremely hard to breathe especially with the uncertainty of what is to come.
News like this always takes precedence over others. I have been so caught up in what could be, that I haven't even had time to share in any good news that has also happened both with myself and with Arley.
Seems to always be the case that when good news comes, the possibility of bad news being so close on the horizon starts to have a lingering effect.
Though I don't dare to even whisper the good news just yet as I fear that when I put it out into the universe that something else will come along and swoop it off into Never Never Land.
For now, everything is on hold until we have more testing and see where things are going to take us next. Until next time...
Arley had her checkup with her Oncologist a few days ago. We discussed some concerns and also discussed who would become her new doctor once her current one moved away. Thankfully, we were in agreement as to whom should be taking over her care from here on out so I can breathe a little easier knowing that it's a doctor we like, though we have only ever had one previous interaction.
Then Arley was prepped for her scans, had them, and we went home. An hour after we got home we received a call from her doctor stating that something had shown up on the scans in a new area of the body and that we would need to schedule further testing immediately.
We were warned about this.
Though it doesn't help my anxiety knowing that this was a possibility and that we now have to wait in limbo before she can have more tests and see where it is we will go from here.
I'm hoping that it's nothing, but preparing for the fact that once you have cancer, the likelihood of more coming is evident and sometimes rampant. Ever since that phone call I feel as though an elephant has been sitting on my chest. It feels extremely hard to breathe especially with the uncertainty of what is to come.
News like this always takes precedence over others. I have been so caught up in what could be, that I haven't even had time to share in any good news that has also happened both with myself and with Arley.
Seems to always be the case that when good news comes, the possibility of bad news being so close on the horizon starts to have a lingering effect.
Though I don't dare to even whisper the good news just yet as I fear that when I put it out into the universe that something else will come along and swoop it off into Never Never Land.
For now, everything is on hold until we have more testing and see where things are going to take us next. Until next time...
Tuesday, May 17, 2016
Shocking News
This is one of those posts where 'I definitely didn't see that coming...'
In today's mail I received a notice from CCMC and didn't really think anything of it because they usually send me mail just before Arley is scheduled to have her scans so I put it off to the side while I got myself settled in from working all day.
I opened the rest of my mail before landing back at that one. When I opened it, I was shocked to see that Arley's Oncologist is leaving at the beginning of June for another state. While I am always happy to see people moving on to bigger and brighter things, I am sad that he is leaving and unsure of who Arley's new Oncologist will be.
The letter didn't state any one doctor specifically, in fact it listed all of them, but the problem is, none of them know Arley, or myself for that matter. They don't know her history, how we do things, the type of relationship I have with her current Oncologist or anything else that we have done for the past two years.
I can say with certainty there is one specific doctor that I do not jive well with and that person will not be someone I will want in charge of Arley's care moving forward, but I still can't decide who I want to be making all these important decisions in Arley's journey from here on out.
It's extremely hard to put your trust into people when it comes to your child(ren) especially in cases such as these where the decisions are of the utmost importance and could have severe consequences if the wrong one is made.
On the other hand, it's selfish to think that our doctors will be around forever, even if that is the hope of course. It's just not going to be easy to make a decision.
I do plan on speaking with her Oncologist when we see him next and formulating a plan of action as well as consulting with two of the nurses that we trust should they be on duty that day as well. I want to make sure we have one specific doctor being the primary from here on out rather than floating her between doctors.
I know in the long run Arley gaining the trust of one specific doctor will make things run more smoothly for our visits especially now that she is more vocal and has her own opinions if she doesn't like something or someone she doesn't respond very well. Can't blame her for that either, she gets the quality from me.
Sigh...
It's always something going on I tell you. If it's not that then it's the fact that Arley keeps getting herself sick all the darn time. We just had a 3 week long episode back in April and here we are again battling another sickness. I swear I may need to stick her in a bubble soon and call it a day lol.
Until next time folks, that's all I have for now
In today's mail I received a notice from CCMC and didn't really think anything of it because they usually send me mail just before Arley is scheduled to have her scans so I put it off to the side while I got myself settled in from working all day.
I opened the rest of my mail before landing back at that one. When I opened it, I was shocked to see that Arley's Oncologist is leaving at the beginning of June for another state. While I am always happy to see people moving on to bigger and brighter things, I am sad that he is leaving and unsure of who Arley's new Oncologist will be.
The letter didn't state any one doctor specifically, in fact it listed all of them, but the problem is, none of them know Arley, or myself for that matter. They don't know her history, how we do things, the type of relationship I have with her current Oncologist or anything else that we have done for the past two years.
I can say with certainty there is one specific doctor that I do not jive well with and that person will not be someone I will want in charge of Arley's care moving forward, but I still can't decide who I want to be making all these important decisions in Arley's journey from here on out.
It's extremely hard to put your trust into people when it comes to your child(ren) especially in cases such as these where the decisions are of the utmost importance and could have severe consequences if the wrong one is made.
On the other hand, it's selfish to think that our doctors will be around forever, even if that is the hope of course. It's just not going to be easy to make a decision.
I do plan on speaking with her Oncologist when we see him next and formulating a plan of action as well as consulting with two of the nurses that we trust should they be on duty that day as well. I want to make sure we have one specific doctor being the primary from here on out rather than floating her between doctors.
I know in the long run Arley gaining the trust of one specific doctor will make things run more smoothly for our visits especially now that she is more vocal and has her own opinions if she doesn't like something or someone she doesn't respond very well. Can't blame her for that either, she gets the quality from me.
Sigh...
It's always something going on I tell you. If it's not that then it's the fact that Arley keeps getting herself sick all the darn time. We just had a 3 week long episode back in April and here we are again battling another sickness. I swear I may need to stick her in a bubble soon and call it a day lol.
Until next time folks, that's all I have for now
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