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Friday, August 22, 2014

Four Day Break

Hey all I know it has been a while since I have updated, but we haven't really had too much going on or any real significant changes.

Arley was granted a four day weekend this weekend. No radiation treatment yesterday or today and we will try again on Monday. My poor girl has burns all over the left side of her neck and part of her left cheek. It's starting to peel a bit too.

I have been rotating between two different creams as well as Neosporin to hopefully help it to clear faster. Her voice has also sounds like a squeaky little mouse and has been like that for days. You have to either lean in close to hear hear or have no outside noise around in order to understand her.

Her walking is still very shaky at best, but I knew this was a side effect to both the chemo and radiation so we are both just going to roll with it.

We will try to have treatment again on Monday and may need to schedule another break. Looks as though we will not be coming home any time soon, but we are still hopeful it will be before her 3rd birthday.

This has been such a stressful and exhausting experience and we are both ready for this portion of her journey to be over so that we can get back into our routine in CT in another couple weeks.

Anyway, that's about all the updating I have for now. We are just taking everything day by day and one at a time. Only way to do it because this is all very overwhelming. Hope you all are getting ready to enjoy your weekend and will update again soon. Until next time...

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