Updates

April 27th...

Morning update: Arley had a rough night for a while until they gave her a slushie to soothe her throat. She fell asleep immediately after and slept through the night. We have a very long road ahead of us and await report from Pathology tomorrow to know what lies ahead of us for her care. Today is more of keeping her calm and comfortable and putting her on a liquid diet. Please continue to share your love and support of her because I tell her all about it. I'm trying to remain positive and strong for her and am doing my absolute best.

 

 

Afternoon update: Arley has been struggling quite a bit this afternoon. Has had fevers off and on, a lot of swelling on the side of her face (normal) and an unfortunate itchy reaction to an antibiotic (the strongest she can have). Right now she's sleeping (due to Benadryl) so hopefully it'll help the itch go away. Awaiting the arrival of her uncle and hoping the evening goes much more smooth.

 

 

Night time update on Arley: as the early evening began she decided she wanted to be Miss Independent and get out of bed. With permission she was unhooked from her machines and was allowed out of bed. She looked like Bambi walking for the first time. Had to get used to her sea legs (lol) she went for a ride around the unit (several times), went into the play room (lasted only a few minutes) and the...n headed back to her room. She ate all of her dinner and took a really long nap. Right now her personality has come out in full force and she's singing me tons of songs. Huge improvement from eariler today. Her pediatrician also visited us today and took me outside for fresh air. We discussed a lot of what's going on with Arley and what to expect in the next couple of days. While she had a good evening there's still a very long road ahead of us.